Monday, August 4, 2008

Papa does not like being shot

I've been doing a lot of thinking lately ...
Have you ever noticed how my Papa is never in my blog pictures?
I thought I would try and make amends
Papa, smile for the camera!!!
OOhh, he's waving at me ...
that's a funny thing to do at the dinner table
William and Nathan, can you help me take a photo of Papa please?
Silly Papa keeps getting his elbow in the way - and I thought I was a bit gauche!
Oh - right - looks like Papa has left the table


I wonder why that was ...

Oh wow, that's funny

now that I've packed the camera away, Papa is back!

Its CUDDLE time!!!
My favorite!



I wonder if Papa knew Mama had smuggled the camera back into the room...

Here are some piccies taken with my Papa when Mama blackmailed him into letting her take some pictures of him ...

Isn't he handsome!And my brothers and Papa always find something to laught about ...
in this case, I think it was something to do with flatulence ... boys will be boys


Everyone says I look just like Papa .... what do you think?





One thing is for sure, me and Mama are NOT camera shy


We get in lots of daily practice, in preparation for when I am a famous superstar ....




ok folks, its been a busy few days, I'm exhausted ... time for my sleep now. Its very tiring being waited on hand and foot, you know....



Ravwaaahr!!!

Thursday, July 31, 2008

Wednesday is looming up both too quickly and not fast enough


OK, so we are off to Spain next Saturday, and we are all very impatient about that.

However, I have a hurdle to overcome a couple of days before we go. I’m being very brave about it, as is my want, but my Mama is a little nervous (eyes rolled to ceiling in despair).

Magnetic Resonance Imaging, hmmm sounds cool doesn’t it! or RMI as we call it here at the Bernard Bunch cos that’s what its called in French. I have to have one next Wednesday.

And because I might find the MRI tunnel and all the restraints frightening and have difficulty keeping still for the 45-60 minutes that it takes to get the best brain pictures, I’m getting a general anaesthesia. Mama is resigned, but not overjoyed, about this.


West Syndrome has been living with me since I was born. Its a form of epilepsy which only occurs in the 0-2yr old age bracket. I struck lucky. My parents caught on to what was going on pretty early, and I was quick to get the right medication. The really lucky part is that the medication immediately got rid of it. No more seizures. Ever. Not all kids get this lucky, and I thank that lucky star which continues to dangle over my head for giving me that extra boost. Infantile spasms can do quite a lot of damage to a developing brain – and my brain is quite delicate enough as it is, thank you very much! Sabril stopped the seizures immediately, when I was 8 months old. So now that I have hit the ‘I’m two years old” milestone, I have to have this RMI MRI thingie to look for scars, malformations, cysts or tumours which might have been created by those initial seizures.
At the end of the day on Wednesday, I will know one of the two following possible things :


Either


· The epilepsy has gone forever (please dangling lucky star, make that the outcome for next Wednesday ok?)

Or


· The infantile spasms have turned into something else and I have to continue taking preventive medication and succumb to their side effects (destroyed peripheral vision - hence my magnificent spectacles permanently perched on my delicate little nose).

Tuesday, July 29, 2008

This is where I will be next week!!! Woooohhhooo!


In a quaint little Spanish village lost in the middle of nowhere ..



surrounded by vineyards




where everything is peaceful (except when my brothers get near each other)

just five minutes from the beach


Look how much I have grown since I was there last summer! What a titch I was!!!
And after a good days splashing around in the Mediterranean, everyone sleeps like ... a baby!!!



The Bernard Bunch just CANT WAIT to go off on hols next week! Can someone press 'fast forward' on time please????