Thursday, July 31, 2008

Wednesday is looming up both too quickly and not fast enough

OK, so we are off to Spain next Saturday, and we are all very impatient about that.

However, I have a hurdle to overcome a couple of days before we go. I’m being very brave about it, as is my want, but my Mama is a little nervous (eyes rolled to ceiling in despair).

Magnetic Resonance Imaging, hmmm sounds cool doesn’t it! or RMI as we call it here at the Bernard Bunch cos that’s what its called in French. I have to have one next Wednesday.

And because I might find the MRI tunnel and all the restraints frightening and have difficulty keeping still for the 45-60 minutes that it takes to get the best brain pictures, I’m getting a general anaesthesia. Mama is resigned, but not overjoyed, about this.

West Syndrome has been living with me since I was born. Its a form of epilepsy which only occurs in the 0-2yr old age bracket. I struck lucky. My parents caught on to what was going on pretty early, and I was quick to get the right medication. The really lucky part is that the medication immediately got rid of it. No more seizures. Ever. Not all kids get this lucky, and I thank that lucky star which continues to dangle over my head for giving me that extra boost. Infantile spasms can do quite a lot of damage to a developing brain – and my brain is quite delicate enough as it is, thank you very much! Sabril stopped the seizures immediately, when I was 8 months old. So now that I have hit the ‘I’m two years old” milestone, I have to have this RMI MRI thingie to look for scars, malformations, cysts or tumours which might have been created by those initial seizures.
At the end of the day on Wednesday, I will know one of the two following possible things :


· The epilepsy has gone forever (please dangling lucky star, make that the outcome for next Wednesday ok?)


· The infantile spasms have turned into something else and I have to continue taking preventive medication and succumb to their side effects (destroyed peripheral vision - hence my magnificent spectacles permanently perched on my delicate little nose).


Amber said... are sooooo brave. I've learned so much from you!!!! Have I have a magnificent mother??? ;^) You will remain in my prayers, I'm glad you will race off to the beach shortly after!
Does your mama blog in Spain? You know we will by dying for results and updates!
much love your way, xoxo

AbbyDawn said...

speaking of agatha ruiz de la prada. . .

AbbyDawn said...

Mandorallyn says your mommy should just look at the anesthetic as a magic spell. Just like Sleeping Beauty, it will put you to sleep. But not for so long that you'll miss your holiday!

Princess Abigail said...

Amber and Abigail, you have cheered up Mama no end! thank you! You have said all the right things!

Princess Abigail said...

Amber and Abigail, you have cheered up Mama no end! thank you! You have said all the right things!

abigail is me. said...

hello Abigail! :)
it's really nice to be able to see you in your pictures. I hope that you and your family are doing well over there!
and I have to say that you are a VERY VERY brave girl. and a lucky one too, because you have such a caring family, especially your Mama!
Take care okay? you will be in my prayers, I assure you that.


abigail is me. said...


Hello Abigail. It's my pleasure for sending you that message. I feel like I've travelled all the way to France too! (since it's one of my favourite countries, I can't help but be very excited!). Do you know where's Brunei? Blogging IS cool. Hahaha.

I'm going to hyperlink you too! I don't mind if you want to link me. Oh, and thank you for complimenting my blog and widget thingy. Glad to be your inspiration! Haha again.

If you don't mind me asking, can I know how old are you, Abigail?

Take care Bernard bunch! :)

abigail is me. said...

Oh! your Mama helps you! Hello Abigail's Mama! I really wish to visit France someday, but I'm only 18, so I'll have to be working first to be able to visit France someday!

I have a younger brother too, and he'll be turning 16 this year! He's a naughty boy too. :)

Say hello to your two brothers! Tell them to study hard. Everybody's cool Abigail. You are as cool as us.

abigail is me. said...

i will only go to France maybe after i graduate and start working. hahahah. so it'll be a long way to go. :)

i can't wait to visit France too!

Rob @ kintropy said...


We're all thinking & praying for your star wish to come true. Hannah has not had the "pleasure" of an MRI yet, but I'm sure she'd share some of your anxiety with you, too.

Spain sounds much more fun that MRI-land. Hope your enjoy your wonderful, well-deserved vacation in Spain!