Tuesday, December 23, 2008

Good news on my haemophilia stuff!

WAY HAY!!!
I just saw my hematologist at the Children’s hospital
She’s the one who diagnosed my Jacobsen’s Syndrome when I was born
and saved my life.
I LOVE this Doctor, she is SOOOOOOOOOO nice!

She takes really good care of my weird blood issues
and she wears some pretty funky clothes which Mama LOVES
Can you see all those bruises on my arms and body?

Yet it turns out : my blood issues are improving!

You may remember, when I was born my platelets were so low that the Doctor’s couldn’t understand how I could still be alive … but blood transfusions were quick to put color back into my face and nudge me back into the world of the living.

Well, today my platelet levels are just like any other child of my age! It took two years for their count-level to get this far...

Isn’t that good news! It means my body has been doing a jolly good job of making me strong.

I still have to seeing my hematologist regularly because whilst I now have the same number of platelets, they don’t do as good a job as other people’s platelets, which is why I’m always covered in bruises. I have to be careful in case it ever turns into a hemorrhage or something.

But the Bernard Bunch is really chuffed at the good news! Isn’t it cool that my lucky star shines so bright? And that my blood doctor is so groovy!


Now listen folks :


I had an adventure on my way back from the Children’s hospital.

See this thing here:



Well, guess what. Mama didn’t.

She just kept whizzing along in her batmobile like 'ain't no thing'

And then there was a boom. Well actually there wasn't a boom.

Cos Mama and the other car both stopped in time.

Phew … BIG sigh of relief : no accident.


This was the car Mama avoided :




Oops!

I was so worried by the whole situation that I continued to sleep.

Anyway, the policeman pointed a finger through the car window at Mama, as if to say

'You naughty person! Don't do that again"
And off we drove back home.....

As you can see, I was still very troubled by the whole episode.


One the motorway on the way home, William noticed something in the wing mirror:

Lots of lights and sirens and cars ... all apparently following Mama .... who kept bumbling along oblivious to the fact that they were all after ... HER!!!! She even waved at them in a friendly way as they whizzed in front of her and tried to pull her over. Mama can be REALLY dense sometimes, and she REALLY didn't cotton on for a while ...

But eventually she realized that all the lights and cars and sirens were for her ... and in confusion and dismay, she stopped the car, and asked what was going on ....

it turns out, that when Mama saw the policeman earlier pointing a finger through the car window at Mama, as if to say 'You naughty person! Don't do that again", what he was actually saying was

PULL OVER! In the name of the law!

OOOPS again!

Well, Mama ended up with a much-deserved fine for not stopping at the 'Stop' sign (go tell all your Mama's and Papa's that they must be REALLY careful with road rules and respect them all)


But she is glad she learned the lesson before any real damage was done.

As you can tell, I was truly traumatized by the whole incident :



And I didn't wake up until I got home, and discovered THIS under the Christmas tree!!



Lots of goodies for William Nathan and me!!!


And later, I met Father Christmas in person, at the local "intermarche' supermarket! Take a look at the piccies on Pauline's blog all about me : http://les-soeurettes-mimi.skyrock.com/. Please leave her a comment, cos she spends a lot of time on her 'Abigail blog' and as my adoptive big sis, deserves some encouragement. And she speaks fluent English!
Father Christmas is such a nice person!!!
Oh hurry up Thursday!!!!

Tuesday, December 16, 2008

Its Christmas party time!!!


I love this time of the year!!!
Loads of Christmas parties in all sorts of interesting places!!!

This one was at 'work' (a place Mama talks about to Papa sometimes) ... there were lots of grown-ups ...

Can you spot me there? I was mesmerized by the noise and swarms of people!!


I enjoyed making a mess for the grown-ups

I stumbled across a very nice Mexican lady
who called herself 'Amiga Secreta'



Something to do with a Secret Santa game Mama was obsessed with recently



I got to play with lots of other kids who came from all over the world!



I had a WHALE of a time!


I even mustered up the courage to go into this lions den thing


There were lots of wild animals in there!




But Mama whisked me out pretty pronto
cos she's a wuss




Christmas is such fun!!!
And this is only just the beginning!!!

Thursday, December 11, 2008

Wouldn't you like to be in my shoes???!!!


Wanna know who this foot gear belongs to????



It belongs to Clémentine and I!!!
You may remember, Clémentine is my occupational therapist
(yes, I eventually found out how to translate 'psychomotricienne'!!)

At the beginning of every session, she helps me learn to take my shoes and socks off.



Every Wednesday, I go see Clémentine for an hour or so, at the CAMSP centre. The CAMSP is a very special centre for very special people like me ... I was on a waiting list for 18 months before I got the place, but BOY was it worth the wait!!! At the CAMSP, I have my own occupational therapist, speech therapist, "Educatrice", Physiotherapist, Paediatrician and Psychologist


Today Clémentine got me working on my repulsion for new textures .... it was fun!!! Look at that disgusted look on my face! I do NOT like polystyrene


Last week I ran to hide when I saw this shiny paper, but today I was lovin' it!!

Clémentine was very impressed at how observant I am becoming - I was obsessed with this new poster and kept wanting her to talk to me about it ... I immediately noticed it, the moment I entered the room. It had not been there on my previous visit. Gosh I'm amazing.

Clémentine got me rolling around in different positions, getting used to what I can do with my body

We played some brilliant ball games

Including rolling around on a VERY LARGE ball

This picture is all fudgy cos I'm bouncing up and down like crazy!



I loved this exercise! And I have come a long way in gaining confidence - I used to CLING on to Clémentine for dear life in the beginning ... now I'm just swinging along like ain't no thing!



Clémentine helped me learn to climb up on the desk chair all by myself ...





I love sitting at this desk, cos it means lots of FUN things are heading my way!!




I spent a while putting wooden balls onto small wooden poles (this game has a fancy name but Mama can never remember it)

I HATE plasticine ... I really find it repulsive. I'm doing better these days, thanks to Clémentine's encouragement and my natural Princessly talent..
Nope, I'm still timidly getting used to it ... its all cold and clammy, not up my street at all!

But I like playing with plastic animals!



Time with Clémentine just flies by ... and before I know it its time to go ... I never like leaving Clémentine's cosy room where we have such fun!!


BUT!!!
Aha!
The fun was not over
because THEN
Pascale from the CAMSP came to our house
and played with me at home!!!
Pascale is my 'Educatrice"



We did puzzles on the kitchen floor


Played dolls


I did some drawing



I'm very talented
I don't mind signing the odd autograph


But this fame stuff does get boring after a while

And I wanted to do something else

So Pascale gave me a book to read

You can see I enjoyed it!!!


Pascale helped me talk through the pictures

And we had a jolly good conversation going there!



And in conclusion,
Mama asked me to publish a picture of
MY FIRST EVER WORK OF ART
I made it at Creche
Its a Christmas Candle holder
Isn't it gorgeous??
Mama is so proud!!!